You may have already heard about Sally Roberts plea for the National Health Service to use ‘safer alternatives’ to treat her son (Neon’s) brain cancer. But this and many other important factors were never fully explained in the news or interviews reporting the case. Instead, Sally was ridiculed and portrayed as an irresponsible, unstable parent; who was putting her son’s life at risk.
The truth is, 7 year old Neon was diagnosed with Medulloblastoma (brain cancer) in October 2012, which was surgically removed. The National Health Service (NHS) and Neon’s oncologist advised that he needed a course of XRAY Radiation and Chemotherapy to ensure the cancer was completely destroyed. However, the treatment offered was an unproven – trial treatment programme called (PNET Trial – Packer Cystplaton, ccnu, vincrustine) which is extremely aggressive and could damage Neon beyond repair, or even lead to premature death. Sally who raised both her children (Neon and twin sister) on healthy ‘organic’ foods and alternative therapies, was extremely concerned about their proposal because it was evident that in the process, Neon would be used for testing experimental drugs. She therefore, requested that safer ‘Alternatives treatments’, less invasive ‘Orthodox treatments’ or a combination of both, be used instead to help improve his long term chances of survival. Questioning why Neon should undergo aggressive trial treatments, when many known, tried, tested, safe and effective Orthodox & Natural treatments exist; the NHS remained adamant that he must be put on their ‘trial treatment programme.’ With her concerns being ignored, her motherly instincts took over and Sally fled (with Neon) to a safe place, to protect him. From then onwards, her life was turned into a living hell.
The NHS sought to control the situation by obtaining a High Court Order to initiate a nationwide police hunt; to gain legal custody of her son and to enforce the treatment. However, they did not expect Sally to legally challenge their decision. She struggled in Court because her initial lawyer was not equipped to handle the case, therefore Human Rights lawyer – Imran Khan came to her defense on the eleventh hour. The High Court gave Sally a seemingly impossible task to find an acceptable ‘alternative treatment’ proven suitable for childhood brain cancer, within a two week period. In a race against time and against all the odds, this determined and dedicated mother managed to uncover unprecedented evidence on a wide range of ‘safer, less-invasive and painless treatments’ that could not only save but also secure a better quality of life for Neon; yet all were rejected by the NHS and High Court. Sadly, against her wishes, Neon commenced the trail treatment programme on Thursday 10 January 2013, consisting of 6 weeks XRAY Radiation and Chemotherapy
However, having contacted numerous Health Professionals (around the world) in the field of ‘orthodox and alternative cancer treatments’; Sally was supplied with a wealth of safe & effective treatments, which strengthened the case and left her even more determined to mount a second High Court appeal.
One treatment in particular called Proton Beam Therapy (carried out in America), is said to be a less aggressive form of Radiotherapy, non-invasive, painless and causes minimal damage to surrounding tissue. It is considered one of the most precise and advanced orthodox treatments for cancer available today. Yet to her complete surprise, two days before the NHS were due to start treatment, Sally learnt that Proton Beam Therapy was well known to the NHS, who not only funds it but also pays for patients ‘travel & accommodation’ to clinics around the world. Sally was never told, nor was it ever offered to Neon. She also learnt that the NHS was actively making sure the public is kept unaware of this less invasive treatment and service, primarily because it is more expensive than XRAY Radiation. However, this treatment is available not only in America but in China, France and Switzerland. Understandably, Sally would like Neon to receive the Proton Beam Therapy, which would also entail using a milder form of chemotherapy; plus incorporate alternative natural treatments – to give him a much better chance of long term survival and reduce overall damage. But the NHS blocked her every step of the way to ensure she cannot take him to America. All in all, Sally was never against orthodox treatments, but simply wanted the opportunity to exercise her right to choose safer and more effective options.
It has gradually become clear to Sally that she has been caught in a web of procedures, rather than true unimpeded scientific assessment of the potential benefits of these approaches… and feels she is fighting bureaucrats, instead of working alongside scientists to evaluate the best choice of treatments, which should produce the most favourable outcome for Neon.
Sally says –
“When cancer enters your life, you can never control what the outcome will be, but we should at least be able to control the amount of pain and suffering, especially where children are concerned. As with life, it is the journey and quality of life that is important. As a mother my responsibility is to shield my son from any immediate or potential harm; this is all I have tried to do… and will continue to do.
My ordeal, plus losing custody of Neon was absolutely devastating and unnecessary, however some good has come out of it. It made me have to question, if in 2 weeks whilst under extreme stress and no sleep, I was able to find a wide range of safer & less invasive cancer treatments, why didn’t the NHS and UK Oncologists, who have this information on file, not come forward or support my case? The answer can be found in the 1939 Cancer Act’ which even the Court tried to avoid addressing. But how can we successfully beat cancer, if this Act prevents proven safe and effective alternatives from being used, researched, explored, promoted or funded.
I would like to urge everyone to please read about this Act and the horrendous side-effects of XRAY Radiotherapy & Chemotherapy, then consider… what you would do, if you were in my position and Neon was your child?”
In her lone quest, Sally uncovered a huge range of successful cancer treatments which uses *minimum levels of either radiotherapy & chemotherapy plus alternatives, or just alternatives, which she wants to make known to the general public, especially cancer sufferers. With cancer now at pandemic levels; effecting 1 in 2 people; this means the majority of us could face the same dilemma at least once in our lifetime. She also feels it is vital for people to understand, the crucial role the 1939 Cancer Act plays in preventing promising life-saving information reaching the public. The Act was passed solely for the purpose of supporting ‘scientific methodologies’ for experimental cancer drug-treatments and not for research into prevention of the disease. Therefore, the Act specifically prohibits and makes it illegal to promote or advertise any effective natural product or therapy proven to heal, prevent or control cancer. Consequently, only radiotherapy, chemotherapy, surgery or new trial-drugs are offered to UK sufferers.
Sally also learnt that prior to the Act, (73 years ago) cancer was considerably rare; affecting only 1 in 50 people… proving that science is no closer to finding ‘a cure’. Despite the reported huge advances in technology, scientific know-how, annual medical breakthroughs, plus enormous promotions and funds raised for cancer research, nothing has changed to-date, except for the escalation of the disease and increasing deaths. The 1939 Cancer Act ensures that most parents and sufferers are led to believe there is no other choice which is simply not true. Independent scientists, oncologists and doctors have confirmed that more people die from surgery, radiotherapy & chemotherapy than the cancer itself. These frightening facts strengthened Sally’s resolve to find the safest, best and most humane treatments for Neon, but can do nothing until she wins a High Court Appeal to regain ‘legal custody’. She then suffered a further setback when her application for Legal Aid was denied. In shear desperation Sally was forced to initiate an EMERGENCY FUNDRAISING APPEAL in an effort to raise £250,000 to cover the legal costs and ongoing treatments abroad. On 25 January 2013, the NHS brought in Social Services to enforce ‘limited’ supervised visits, at a critical time when Neon has verbalized that he wants and needs his mum; and no long wanted to wear the XRAY Radiation mask. In absolute despair, Sally wrote a heartbreaking letter to the Prime Minister (David Cameron), pleading with him to intervene.
Sally’s experience, not only shows how easily this can happen to parents, but also opens up the Pandora’s Box on ‘the cancer business’ in Medical Institutions, Legal Establishments and the Media; questioning matters of transparency, accountability, medical ethics, vested interests, collusion and corruption. In Sally’s case, it is evident that she suffered a blatant miscarriage-of-justice, gross negligence, violation of Human & Parental Rights, Freedom of Choice, and confirms that Corporate abuse is widespread within our Health Institutions.
No doubt her brave stance and love for Neon will be far reaching. Apart from creating greater public awareness, she will surely make a huge difference to cancer sufferers, by bringing to light safer treatments and encouraging integration within the general healthcare system.
When Neon is in better health and her ordeal is over, Sally plans to set up a website to share the amazing life-saving information she has received, which she hopes will help other cancer sufferers and parents. If you would like to join her mailing list and receive News updates on Neon’s progress, please follow this blog; ‘Like’ Neon on Facebook and ‘Follow him’ on Twitter. In the meantime, as every second counts, she is calling on everyone to please donate to Neon’s Emergency Appeal today.
IT’S TIME TO SAFEGUARD ‘YOUR’ RIGHTS!
Sally says – “PARENTS BE WARNED –
this could happen to you too, as Parental Rights in the UK no longer exists!
Sally’s case is a brutal reminder of the importance of petitions THE NATION SPEAKS & GLOBAL VOICES UNITE. If you haven’t already, we are encouraging everyone across the globe to watch this 5 minute video ‘Why Are We Dying To Be Healthy?’ – SIGN the petition and SHARE. Remember the power is in your hands to safeguard your rights, plus protect yourself, loved-ones & future generations from Corporate Abuse. To sign or learn more please visit – http://joininghandsinhealth.com/petition/global/spread_the_word.php
- Read the vast list of side effects of Neon’s current treatment
- Read the list of less invasive and more effective Cancer treatments
- Letter to Prime Minister (David Cameron).
- Cancer Act 1939 – Reform Application.
HELP SALLY REACH HER GOAL. :
- Please Spread the Word : We are asking everyone to please circulate this article to family, friends and social networks and encourage them to donate.
- Add a Widget to your website : Click on ‘Embed’ to access code on Neon’s donations page.